By Frances Ryan for The Guardian Opinion:

‘Tables blocking the road. Chairs over flat kerbs. Gazebos built on accessible parking. The surge in street dining since lockdown eased in England has been great for businesses, but not so much for wheelchair users and people with mobility conditions, who report being unable to get around their hometowns due to the new blockages.

Many of these people have been stuck indoors for up to a year shielding, and on their first taste of freedom are now being blocked from getting to the shops or pub. “All I want to do is go and meet my friends and have a pint,” said Katie Pennick, a campaigner and wheelchair user, recently on BBC Radio 4. It’s not your typical civil rights slogan but it characterises the crunch of so much disability politics: disabled people deserve the right to have a life like everyone else.

This sort of thoughtless planning would be frustrating at any time, but it is all the more so as we come out of a period when disability inclusion was finally given attention. At the start of the first lockdown, I reported that society was opening up to millions of disabled and chronically ill people as “virtual living” became the norm – from Zoom job interviews and streamed gigs and theatre to NHS phone appointments. But just as it took the non-disabled public to experience a dose of what disabled people have for years before access was improved, the fear is that any gains made during the pandemic will be discarded now that the wider public no longer need them themselves.

Take work for example. The shift to working at home over the past year brought new opportunities to those previously excluded from the workforce. As one woman with agoraphobia told me: “Lockdown has opened my world” – it allowed her to get a job from her front room. But as ministers and some employers push for a return to the office, many disabled workers are worried their hard-won progress will go backwards.A research scientist with endometriosis and IBS told me her employer has already stopped letting her work from home full-time, even though her job can be done remotely. “The office is ‘going back to normal’ and they don’t want us at home even though I can do a better job [here],” she said.Advertisementhttps://3c211a790ab0736a572486792c9c86b6.safeframe.googlesyndication.com/safeframe/1-0-38/html/container.html

The disability employment gap in the UK is vast – in 2020, the employment rate for disabled people was just 53.7%, compared with 82% for non-disabled people – and has been largely stagnant for years. Retaining flexible working is one way to address it.Such working patterns will help many others beyond disabled workers, from working parents to carers of elderly parents. Rather than being reduced in coming months, these schemes should be extended; a survey by the Chartered Institute of Personnel and Development found that almost half of workers currently don’t have flexible working arrangements such as flexitime, part-time hours or job shares.

Or look at socialising. The Zoom pub quiz became a cliche of lockdown, but what many of us did informally with friends was also replicated by companies, with art exhibitions streaming online or bars running virtual club nights. As venues open back up, I’m hearing from scores of disabled people losing out: from the parishioner whose church’s Zoom coffee morning allowed her to speak to people from her congregation for the first time in 15 years but which has now been stopped, to the person who “went” to an LGBTQ+ club night for the first time in their life when it went online during lockdown but has now watched it close.

Too often, cultural prejudice around disability assumes disabled people don’t need the same pleasures as everyone else, but health doesn’t change who you are. As one music-loving young housebound woman shared on Twitter: “Magically, over the past year I’ve seen countless live gigs and the thought of that being taken away is devastating.”

It doesn’t have to be this way. The Young Vic theatre in London announced in May that it plans to livestream all of its future productions, and gym companies say online workouts are here to stay, despite the popular return of “in person” classes. This doesn’t mean good access is about moving everything online: many disabled people want face-to-face settings, and besides, the surge in virtual experiences shouldn’t let businesses off the hook from adapting physical spaces which are still too often inaccessible. It simply means that it is right to keep the option, and that we need a culture in which companies think about disabled people – and our cash – as valuable.

As we rightly celebrate a return to normal, it should be remembered that, for disabled people, “normal” too often means being excluded from everyday life. Anyone who has felt the pang of missing nights with mates in the pub over the past year can empathise and support disabled people being restricted and isolated now. If you spot a restaurant blocking a wheelchair entrance, tweet a photo and tag your local council. If your employer is rolling back flexible working rights, talk to your union (or join one).

Attempts to gain access for disabled people are often met with pushback: it’s too much trouble, too expensive or simply unnecessary. And yet lockdown showed that sweeping changes can be made practically overnight with little fuss. The question is, if it was done for non-disabled people then, why not disabled people now?’

Originally published by Frances Ryan for The Guardian: https://www.theguardian.com/commentisfree/2021/jun/02/remote-working-disabled-people-back-to-normal-disability-inclusion

From Disability Rights UK:

‘In April 2021, Z2K surveyed 1,420 Disabled people who have been through the assessment process for disability benefits: PIP, ESA, and  the Limited Capability for Work elements of Universal Credit (UC).

Those surveyed by Z2K were asked to share their insights on the assessment process – including the Mandatory Reconsideration (MR) and appeals process – as well as the changes that they would like to see made to the current assessment regime.

They were also asked their opinion on whether the Government’s upcoming Health and Disability Green Paper will deliver on generating desired reform. 

In terms of assessment and MR/appeal process:

  • 70 % of people feel like the assessor DWP contracted to carry out their assessment did not understand their condition 
  • 66 % of people feel like the assessment report they got after the decision did not reflect what they’d told the assessor in the assessment
  • 49 % of those respondents who challenged a decision to refuse their claim at DWP’s internal MR stage saw that decision overturned.
  • 87 % of the remaining respondents who went on to appeal to the independent First Tier Tribunal had DWP’s decision overturned

In terms of the Health and Disability Green Paper:

  • 89 % of respondents are either “not at all confident” (69 %) or “not so confident” (20 %) that the changes they would like to see made to the assessment process will be included in DWP’s upcoming Health & Disability Green Paper
  • Similarly, 88 % of people are either “not at all confident” (67 %) or “not so confident” (21 %) that the Government will use the feedback they receive during this Green Paper consultation to make changes to the assessment process for benefits
  • 74 % of respondents think the Government won’t even bother to listen to the experiences of those who have been through the assessment process themselves.

Respondents were also asked what changes to the assessment process for disability benefits they would like to see Government make, and some of the recommendations put forward included: 

  • Reinstate indefinite awards for people whose condition will sadly not improve
  • All assessors to receive training to ensure they do not discriminate against individuals, and treat everyone they are assessing with dignity and respect  
  • Ensure assessors are properly trained in the condition they are assessing
  • If an assessor does not have specialist knowledge of the condition they are assessing, they must consult with experts and use up-to-date evidence when making their assessment
  • Medical evidence, people’s own testimony, evidence from parents, support workers, social workers, mental health workers etc. should not be undermined, misconstrued or ignored by assessors
  • Stop assessments entirely and decision to be made solely on medical evidence, people’s own testimony, evidence from parents, support workers, social workers, mental health workers etc.
  • Audio record all assessments as default (with an ‘opt out’ option), and provide a copy to both DWP and individual
  • Remove private assessment companies, and bring assessments back in house or have them conducted by NHS like in Scotland 

Ken Butler DR UK’s welfare Rights and Policy Adviser said:

“The findings of this this report are shocking and reveal why the DWP itself has admitted it has lost the trust of Disabled people.

As Z2K conclude, “the assessment processes for disability benefits must be fundamentally reformed if it is to be fit for purpose and able to correctly assess people’s ability to access work or receive support for their disability”.

In addition, DR UK supports its view that “in the long-term, an alternative system should be co-produced with “disabled people themselves, so that it works for those with direct experience of this regime and those that went before it”.

This report is short at ten pages but its insights and conclusions deserves reading by all Disabled people and their organisations.  

Its publication is timely and will undoubtedly inform and evidence responses to the Green Paper.”

Note:  Z2K are calling on the Government to publish the Green paper and ask that you take30 seconds today to write to your MP to ask it publish the long promised consultation

The new report People Before Process: The state of disability benefit assessments and the urgent need for reform is available from z2k.org.

See also our related news story Minister previews Disability Green Paper social security reforms .’

Originally published by Disability Rights UK, 25/5/21

disabilityrightsuk.org/news/2021/may/70-disabled-people-feel-dwp-contracted-assessor-did-not-understand-their-condition

Connected Voice’s Haref project has been working with key organisations to produce and share COVID-19 vaccine information. Haref strives for health equality for local Black Asian and Minority Ethnic (BAME) Communities and the resources are particularly aimed at people from these communities but still useful for all.

Haref recently ran an online information session about the COVID-19 vaccines. This is a 54 minute long recording of the vaccine information session with Kate Vogelsang (NGPS) and Lorna Longworth (Clinical Director) explaining about the vaccines:

  • How they are being administered in Newcastle?
  • What is in the vaccines?
  • How do the vaccines work?
  • How will people be notified about getting a vaccine?

Questions from Haref Network members include:

  • How do asylum seekers get notified about their vaccine date?
  • Do people have a choice of which vaccine to get?
  • What side effects might you experience after each vaccine?
  • How long after receiving the first injection do you have immunity?

For more information on Haref, go to https://connectedvoice.org.uk/services/haref/haref-network

Friday 12th March 2021